This Sucks - MS 101

A place to vent -- both the good and bad -- in coping with this life altering disease.

Monday, February 06, 2006

HEY..

OK HERE WE GO BACK AGAIN.. UGHH IM SRY READY TO GET IT OVER WITH I WANNA GO GET THAT BLUE MED THAT MAKES ME FEEL LIKE CRAP FOR A COUPLE DAYS THEN MAKES ME FEEL GREAT AND ONLY HOSE WHO HAVE HAD IT CAN UNDERSTAND IT... MOM SAYS IT LIKE A ILLEGAL DRUG TO ME MY BODY PHINES THE SHYT LOL ANYWAYS IM TRYIN TO DEAL AM I DO IT WELL I DONT KNOW WE SHALL SEE...ANYWAYS.. I WANT IT... I NEED IT ... OH I WISH IT WAS OVER... AND DOWN...

9 Comments:

Blogger personallog! said...

I know what you mean! (I call it smurf blood! you know the cartoon people,papa smurf ect ect!) I have had 6 days in hospital with it! I know it works! You just have to grit your teeth and wait till its over! My thoughts are with you...its hard but it gets better. Use the good time to make you life worth while....ok I dont much, but I now I think its worth while. Good luck!
Dave

8:45 AM  
Blogger Cutter said...

Tell me of this magic smurf juice?

5:03 AM  
Blogger personallog! said...

Miroxatone stops disease progression in its tracks....at least for a while! you can only take 10 doses of it before you start possioning your body....well that what my nero has told me! They use it for lukemia suffers...you know cancer of the blood! Its hard but the benifits out way the sickness it gives! I cant get any more untill my nero says...I have 4 left in reserve just in case.. I am on copaxone at the moment and it keeps me going without making me tired...too much! Hopoe this helps!
Dave rrms!

8:26 AM  
Blogger personallog! said...

Missing your updates! Come on Brandy....How are you?

Dave

6:14 AM  
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11:02 PM  
Blogger The Patient Connection said...

Just to let you know the our research blog into MS is still open

Please fell free to go to

http://www.thepatientconnections.com/blog.asp?uid=15

Use this to share your story with others make us all better informed

All the best

Belinda

12:51 AM  
Blogger herrad said...

hello Brandi

wonder how yo are doing as there are no recent posts.

take care.

regards

9:09 AM  
Anonymous Anonymous said...

Everyone diagnosed with MS should be tested for Lyme via Igenex Inc. Regular Lyme tests ARE NOT reliable. If your MS is aggressive, gets even worse with steroids, etc I think it is reckless to not test for Lyme via Igenex. You can google Igenex to learn more. In short, most Lyme tests only look for certain surface proteins, not even the most common protein used to make the vaccine! Also, they set the antibody test very low, so unless you have TON of anitbodies, you will test negative. There are seriously conflicts of interest invloved n this disease.
I was told I couldnt have anything but MS and now I am cured with IV antibiotics and long-term oral antibiotics.

I know MS is caused by multiple unknown etologies. But, Lyme is one known cause, please check it out just in case. Especially if u live in NY, NJ, PA, MD, VA, NC and so on...

www.myspace.com/iamcrystal77

8:30 PM  
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7:00 AM  

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